2025 DREAMERS | beachviewdreams

Introducing our Summer 2025 DREAMERS

Lily

Lily, our 13 year old daughter, is intelligent, funny and kind. She loves art, music and nature. Lily spends most of her free time reading, drawing and being outside.

After some dizziness and trouble swallowing in December 2024, an MRI showed that Lily has a rare form of terminal brain cancer called Diffuse Intrinsic Pontine Glioma, DIPG. This was a shock to as she has always been very energetic and healthy.

Lily started radiation therapy immediately but rapidly lost all ability to walk, eat, and even talk in less than a month after receiving the diagnosis. After an experimental triple dose radiation therapy she slowly regained the ability to communicate and has been able making slow but steady progress over the last few months.

Lily has been incredibly brave and continues to work hard to regain control of her movements and other functions. After celebrating her 13th birthday in February, Lily regained the ability to eat on her own and likes to spend time enjoying a lot of delicious food throughout her day. She continues to improve in ways that the medical professionals did not think was possible.

Lily is an incredible young woman. She is handling her situation with a lot of grace and strength, we were very happy to be able to bring Lily back home in February after almost 2 months of challenging hospital stays. She has enjoyed the last few months of being at home and having the ability to spend time with friends and family. She especially likes going to the park, movie theater and out for ice cream!

Lily and her seven-year-old brother, Luca, love seeing the ocean and spending time on the boardwalk and are so excited for the upcoming trip.

Jade

This is our three-year-old daughter Jade. Jade was born with an extremely rare blood clotting disorder called Protein C Deficiency. This disorder led to complications at birth such as blindness, cerebral palsy, and epilepsy.

Jade has such a joy for life. She loves being around people and especially her cousins. She loves the sound of animals, listening to music, and the roller coaster feel of cobblestone when we go for walks in her stroller.

Wether it’s her laugh, her cute smirk, or her kicking in excitement, she knows how to bring light and joy to those around her. We are so proud of her and all that she has overcome in the past three years. We can’t wait to see her enjoy the ocean breeze and all the sounds of OCNJ!

Zoey

Here is my daughter, Zoey. She goes through a lot in life. She has to have monthly infusions at Children’s Hospital of IVIG.. Plus video EEGs at children’s up to five days due to seizures. She has four brain, tumors and ADHD, autism. Anxiety and sensory processing disorder.

We are in and out of the hospital quite a bit. She also has been in quite a bit of pain lately with her legs and headaches pretty much daily. I love making memories with her so to be able to sit at the ocean with family will be wonderful for her to take a break away from hospital walls. She is an artist and she can draw anything. She’s very smart and talented. She’s a beautiful soul inside and out.

Tristan

Tristan is 9 years old and probably the goofiest kid you will ever meet. He has a radiant smile and the

most infectious laugh. At the age of 1.5 he received his first diagnosis of a global developmental delay

and then at 3 he received a formal diagnosis of Autism Spectrum Disorder. Along with his ASD, he has

ADHD, and anxiety. Our life may look a bit different than most but Tristan has never let his diagnoses

get him down. He spends every day loving life and laughing. We always joke that he is the loudest

“non-verbal” child we know!

Tristan is a fish and spends the majority of his summer swimming. He hasn’t been to the ocean or on a

true vacation since he was 2 years old so are so very grateful for this amazing gift and experience!

Lliam

Lliam is our bubbly 3yo who was diagnosed with Autism Spectrum disorder Level 3, and sensory processing disorder. While it has been a challenge, we make the best of each day. Before Lliam started

Showing signs we had no knowledge on Autism other than the basics so throughout the past 2 years I have dedicated so much time and effort in research and finding out the “why’s”. We love each day to the fullest with his spunky, yet determined attitude. He has accomplished so many things over the years we thought he’d never experience, such as asking for help for the first time and singing every nursery rhyme you can think of. Lliam loves safari animals, and animals in general (specifically Elephants and cats) Lliam loves the water, and being outdoors and doing all the things kids his age are doing despite his lack of communication and occasional meltdowns. This opportunity means so much to us, as we have been unable to take a proper vacation due to doctors appointments, financial difficulties and Lliam’s therapy. Thank you Beachview for giving Lliam and our family this opportunity to make memories and have fun!